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Related Experiment Video

Updated: Jun 25, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Parent and community participation in program design.

Nancy Uding1, Gail M Kieckhefer, Cristine M Trahms

  • 1Children's Hospital and Regional Medical Center, Seattle, Washington, USA.

Clinical Nursing Research
|February 12, 2009
PubMed
Summary
This summary is machine-generated.

Parents of children with chronic illnesses benefit from the Building on Family Strengths (BFS) program. Feedback from diverse families refined the BFS curriculum, enhancing its effectiveness for parents facing unique challenges.

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Area of Science:

  • Pediatrics
  • Family Studies
  • Health Education

Background:

  • Parents of children with chronic illnesses encounter unique stressors and challenges.
  • Existing support programs may not fully address the specific needs of these families.
  • A family-centered approach is crucial for effective parent support.

Purpose of the Study:

  • To describe the refinement process of the Building on Family Strengths (BFS) program.
  • To incorporate feedback from diverse stakeholders into the BFS curriculum.
  • To enhance the program's relevance and effectiveness for parents of chronically ill children.

Main Methods:

  • Involved potential participant families in curriculum refinement.
  • Conducted parent focus groups to gather feedback.
  • Collected input from cultural community leaders and pilot class participants.

Main Results:

  • Received significant feedback from parents, community leaders, and pilot participants.
  • Feedback directly influenced the final BFS curriculum development.
  • The refinement process ensured the program was attuned to the needs of the target population.

Conclusions:

  • Family-centered program development, incorporating user feedback, is essential.
  • The refined BFS curriculum is better suited to support parents of children with chronic illnesses.
  • Findings offer valuable insights for researchers and educators developing similar programs.