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Related Experiment Video

Updated: Jun 25, 2026

Induction and Diverse Assessment Indicators of Experimental Autoimmune Encephalomyelitis

Induction and Diverse Assessment Indicators of Experimental Autoimmune Encephalomyelitis

Published on: September 9, 2022

Quality care in transverse myelitis: a responsive protocol.

Carrilin C Trecker¹, Dana E Kozubal, Megan Quigg

¹Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.

Journal of Child Neurology

|February 13, 2009

Summary

This summary is machine-generated.

Parents of children with transverse myelitis reported only 50% satisfaction with care coordination. A significant gap exists between desired and received specialty care, impacting patient well-being.

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Last Updated: Jun 25, 2026

Induction and Diverse Assessment Indicators of Experimental Autoimmune Encephalomyelitis

Induction and Diverse Assessment Indicators of Experimental Autoimmune Encephalomyelitis

Published on: September 9, 2022

Area of Science:

Pediatric Neurology
Health Services Research

Background:

Transverse myelitis presents complex challenges for pediatric patients and their families.
Navigating healthcare systems for specialized care can be difficult for children with chronic neurological conditions.

Purpose of the Study:

To inform the development of a multidisciplinary care center for pediatric transverse myelitis.
To assess parental experiences and satisfaction with healthcare navigation for children with transverse myelitis.

Main Methods:

Survey of parents (n=20) of children diagnosed with transverse myelitis (ages 0.5-21 years).
Analysis of acute care events and long-term follow-up satisfaction.
Evaluation of specialty care access versus patient desire.

Main Results:

Overall patient satisfaction with care coordination was approximately 50%.
A significant deficit was observed in accessing desired specialty care, including psychiatry (64% gap) and gastroenterology (43% gap).
Patients expressed a strong desire for integrated, collaborative care environments.

Conclusions:

Multidisciplinary care models are crucial for improving outcomes in pediatric transverse myelitis.
Addressing disparities in accessing specialized mental and gastrointestinal health services is essential.
Further research with larger cohorts is needed to fully understand and meet patient needs.