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Published on: July 31, 2017
Caring for an individual with autism disorder: a qualitative analysis
Kenneth W Phelps1, Jennifer L Hodgson, Susan L McCammon
1Department of Child Development and Family Relations, East Carolina University, Greenville, NC 27858, USA. kwp0915@ecu.edu
Background:
Caregivers in this qualitative study reported the multidimensional implications of having a child with autism on their family's lives and overall functioning.
Method:
The Effects of the Situation Questionnaire (Yatchmenoff, Koren, Friesen, Gordon, & Kinney, 1998) was used to gather qualitative data from 80 caregivers. Colaizzi's (1978) phenomenological data analysis method was used to analyse the caregivers' written narratives. Biopsychosocial-spiritual, systemic, and ecological theoretical lenses were used to conceptualise the recorded experiences.
Results:
Seven thematic content areas emerged from the caregivers' data. They include: psychological implications, familial implications, social implications, services, spiritual benefits, economic challenges, and focus on the future of having a child diagnosed with autism.
Conclusions:
The results of this study offer valuable insight into how helping professionals may attend to the biological, psychological, social, and spiritual dimensions of those caring for an individual with autism.
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