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Family needs assessment in cerebral palsy clinic
Constance F Buran1, Kathleen Sawin, Patricia Grayson
1Pediatric Ambulatory Care Services, Riley Hospital for Children, Indianapolis, IN, USA. cburan@clarian.org
Insights
Parents of children with cerebral palsy need services most, followed by information and then help with obstacles to care. The Family Needs Assessment Tool (FNAT) can assess these needs.
Area of Science:
- Pediatric Rehabilitation
- Family-Centered Care
- Disability Studies
Background:
- Cerebral palsy (CP) significantly impacts families, necessitating a clear understanding of their needs.
- Assessing parental perceptions is crucial for effective support and intervention in pediatric CP care.
Purpose of the Study:
- To identify parental needs in service, information, and obstacles to care for children with cerebral palsy.
- To evaluate the internal reliability of the Family Needs Assessment Tool (FNAT) for assessing these needs.
Main Methods:
- The Family Needs Assessment Tool (FNAT), comprising a demographic survey and three subscales (service, information, obstacles to care), was administered to parents.
- Internal reliability of the FNAT was assessed.
Main Results:
- Parents ranked "services" as their highest need, followed by "information" and then "obstacles to care."
- The FNAT demonstrated potential utility in capturing these parental perceptions.
Conclusions:
- The FNAT is a valuable instrument for understanding parental needs in cerebral palsy care.
- Findings can inform program planning and enhance the quality of care by addressing central parental concerns.
Purpose:
The dual purpose of this study was to identify areas of need as perceived by parents of children with cerebral palsy in three domains and to evaluate internal reliability of the Family Needs Assessment Tool (FNAT).
Design And Methods:
The FNAT was distributed to parents and includes a demographic survey and three subscales: service, information, and obstacles to care.
Results:
Parents identified services as their greatest need, followed by information and then obstacles to care.
Practice Implications:
The FNAT may be utilized to evaluate parental perceptions of needs, and provide clinicians with information for program planning and assessing needs central to providing quality care.
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