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Research Ethics Review and Aboriginal Community Values: Can the Two be Reconciled?

Kathleen Cranley Glass¹, Joseph Kaufert

¹McGill University (Canada).

Journal of Empirical Research on Human Research Ethics : JERHRE

|April 24, 2009

Summary

Research ethics review committees (RECs) are challenged by Indigenous communities seeking culturally sensitive processes. This paper explores Indigenous proposals for community-based ethics review, emphasizing collective rights and community consent.

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Area of Science:

Bioethics
Indigenous Health Research
Research Ethics

Background:

Current Research Ethics Committees (RECs) operate within institutional frameworks, prioritizing autonomous choice and individualistic decision-making.
Indigenous researchers and communities have identified significant ethical issues in human research that are often overlooked by traditional RECs.
Existing REC structures may not adequately address the cultural, methodological, and ethical perspectives of Indigenous populations.

Purpose of the Study:

To explore the critiques and proposed changes to research ethics review processes from Indigenous perspectives.
To examine the political, legal, and ethical frameworks influencing current REC review.
To contrast existing REC models with emerging Aboriginal proposals for community-based research ethics review.

Main Methods:

Exploration of political, legal, and ethical frameworks informing REC review.
Analysis of the process and content of these frameworks.
Examination of Indigenous proposals for community-based research ethics review, including collective rights and community consent.

Main Results:

Indigenous communities advocate for community-sensitive research ethics review processes that recognize collective rights, including community consent.
Alternative policy guidelines and community-based review bodies are seen as challenging the individualistic, autonomy-focused approach of current RECs.
A fundamental difference in values may exist between traditional REC models and Indigenous approaches to research ethics.

Conclusions:

Current REC models may need to be adapted to accommodate the requirements of both communities and RECs.
Integrating Indigenous perspectives is crucial for developing more equitable and effective research ethics review.
Recommendations are provided for accommodating community-based research ethics review within existing REC structures.