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The pediatric neurosurgical patient: the challenge of growing up
1Division of Neurological Surgery, Barrow Neurological Institute, St. Joseph's Hospital and Medical Center, Phoenix, Arizona 85013, USA. neuropub@chw.edu
Insights
Adults with spina bifida and hydrocephalus require lifelong care. Transitioning pediatric neurosurgical patients to adult care presents significant challenges, impacting coordinated management and long-term outcomes.
Area of Science:
- Neurosurgery
- Pediatric Neurology
- Healthcare Transition
Background:
- Lifelong neurodevelopmental conditions like spina bifida and hydrocephalus require ongoing management.
- Pediatric-focused coordinated care models are not consistently available for adults.
- Patients face challenges in accessing appropriate adult neurosurgical services post-pediatric care.
Purpose of the Study:
- To explore the difficulties in transitioning pediatric neurosurgical patients to adult care.
- To identify the reasons behind the lack of coordinated care for adults with neurodevelopmental conditions.
- To examine the challenges in planning care transitions from pediatric to adult neurosurgery.
Main Methods:
- Qualitative exploration of care transition barriers.
- Analysis of geographic variations in care coordination.
- Review of existing transition planning strategies.
Main Results:
- Care transition difficulties are complex and vary geographically.
- Existing adult neurosurgical practices may not be equipped for complex pediatric cases.
- Lack of standardized transition protocols hinders continuity of care.
Conclusions:
- Effective transition planning is crucial for adults with spina bifida and hydrocephalus.
- Developing integrated pediatric-to-adult neurosurgical care pathways is essential.
- Addressing systemic barriers is necessary to improve long-term outcomes for these patients.
Abstract:
Adults treated in infancy for conditions such as spina bifida and hydrocephalus are not cured of their conditions even after reaching adulthood. However, patients who have received coordinated care within a children's facility are unlikely to find the same type of coordinated care when they become adults. This article explores the various causes of these difficulties, which are not uniform across geographic areas, and the need for and challenges of planning the transition of care of pediatric neurosurgical patients from pediatric neurosurgeons to general or adult neurosurgical practices.
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