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Published on: August 5, 2020

[Dignified death for children: concept analysis].

Kátia Poles1, Regina Szylit Bousso

  • 1Programa de Pós-Graduação em Enfermagem da Escola de Enfermagem da Universidade de São Paulo, Bolsista CNPq, Lavras, MG, Brazil. kpoles@usp.br

Revista Da Escola De Enfermagem Da U S P
|May 15, 2009
PubMed
Summary
This summary is machine-generated.

Defining a dignified death for children is complex and inconsistently described in medical literature. Key attributes include quality of life, palliative care, and family-centered support, highlighting a need for clearer pediatric end-of-life care definitions.

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Area of Science:

  • Pediatric Palliative Care
  • Bioethics
  • Concept Analysis in Nursing

Context:

  • End-of-life care for children presents unique ethical and practical challenges.
  • Existing literature lacks a consistent definition of dignified death in pediatric contexts.
  • Medical and nursing fields have explored aspects of dignified death but not comprehensively for children.

Purpose:

  • To describe the background, attributes, and consequences of the concept of dignified death for children.
  • To analyze existing literature on dignified death in pediatric care using a concept analysis strategy.
  • To identify key components contributing to a dignified death for children.

Summary:

  • A concept analysis of 40 medical and nursing articles identified core attributes of dignified death for children.
  • These attributes include quality of life, child- and family-centered care, palliative care knowledge, shared decision-making, suffering relief, clear communication, supportive relationships, and a welcoming environment.
  • The study found that definitions of dignified death for children are often vague and inconsistently applied across authors.

Impact:

  • Highlights the need for a more consistent and clearly defined concept of dignified death in pediatric end-of-life care.
  • Provides a foundation for developing evidence-based guidelines for pediatric palliative care.
  • Emphasizes the importance of integrating child- and family-centered approaches in end-of-life decision-making for children.