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This study demonstrates that an Internet-based headache diary is a feasible and acceptable tool for collecting migraine data. It successfully recruited and retained diverse participants, aiding their understanding of headache patterns.

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Area of Science:

  • Neurology
  • Digital Health
  • Clinical Research Methods

Background:

  • Migraine headaches are often perceived as unpredictable by sufferers.
  • Daily headache diaries can identify prodromal warning symptoms in up to 70% of migraine patients.
  • Internet-based diaries offer a novel approach to headache tracking, previously unexplored.

Purpose of the Study:

  • To assess the feasibility of using an Internet-based headache diary.
  • To determine the acceptability of this digital tool for daily data collection.
  • To achieve acceptable completion rates for online headache diaries.

Main Methods:

  • A conventional headache diary was adapted for internet-based data collection over four months.
  • Participants (18-55 years, migraine criteria) were recruited online, consented electronically, and screened.
  • Daily diary entries, health questionnaires, and follow-up interviews were conducted via the internet.

Main Results:

  • The Internet-based approach successfully recruited participants from diverse geographical locations.
  • A majority of participants (68%) completed over 50% of diary pages within 24 hours.
  • Most participants (87%) expressed willingness to continue using the diary and found it beneficial for understanding their headache patterns.

Conclusions:

  • Internet-based headache diaries are a viable and acceptable method for data collection in migraine research.
  • This digital tool facilitates access to geographically diverse populations, including those new to research.
  • The study confirms the feasibility of online recruitment and retention for such research.