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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

[Criteria for prioritisation from a societal perspective].

Adele Diederich¹, Margrit Schreier

¹Jacobs University Bremen, School of Humanities and Social Sciences, Campus Ring 1, 28759 Bremen, Germany. a.diederich@jacobs-university.de

Zeitschrift Fur Evidenz, Fortbildung Und Qualitat Im Gesundheitswesen

|May 30, 2009

Summary

German healthcare faces financial strain, necessitating benefit limitations. Public input is crucial for ethical priority setting, moving beyond solely physician perspectives.

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Area of Science:

Health Economics
Bioethics
Public Health Policy

Context:

The German public health care system is experiencing financial difficulties, leading to the need for benefit limitations.
Priority setting in healthcare is a complex issue involving ethical, legal, social, and political dimensions.
Historically, healthcare priority setting discussions have been dominated by medical professionals, often disregarding patient and public views.

Purpose:

To explore international experiences with healthcare priority setting.
To investigate the perspectives of healthy German citizens on healthcare prioritization criteria.
To inform a more inclusive public debate on resource allocation in healthcare.

Summary:

This study examines international approaches to healthcare priority setting and presents preliminary findings from qualitative interviews with German citizens.
The research focuses on public opinions regarding prioritization based on disease, therapy, lifestyle, demographics, and economic/ethical factors.
It highlights the gap between the need for public involvement and the current dominance of medical and sponsor interests in priority setting.

Impact:

Provides insights into public preferences for healthcare resource allocation, informing policy development.
Contributes to a more democratically grounded approach to health care priority setting.
Encourages broader societal engagement in discussions about the future of the German health care system.