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Updated: Jun 22, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
What do prospective research participants want to know? What do they assume they know already?
1Rutgers University, USA. jamiewalkup.research@gmail.com
Abstract:
USING A FRAMEWORK BASED ON conversational pragmatics, data were collected on spontaneous information requests by people who were invited to participate in a simple research study. Subjects requested information on some standard elements of consent (e.g., scientific purpose, time required, investigator), but not others (e.g., voluntariness, freedom to quit, data maintenance, risks). Using post hoc fixed response queries, we investigated factors responsible for absence of queries on elements of consent. We found that participants sometimes did not ask because they assumed they already knew the answer; other times they did not care about the answer. This small pilot study suggests that inclusion of elements considered inappropriate by respondents may be redundant and, in at least some circumstances, potentially confusing.
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