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Domiciliary and day care services: Why do people with dementia refuse?
Marianne Durand1, Aroushka James, Aruna Ravishankar
1Manchester Mental Health and Social Care Trust, Chorlton House, 70 Manchester Road, Chorlton Cum Hardy, Manchester, Greater Manchester M21 9UN, UK.
Many people with dementia living alone refuse day services due to misconceptions or potential depression. Further exploration of these barriers is crucial for improving care access.
Area of Science:
- Gerontology
- Psychiatry
- Dementia Care
Background:
- Day services are vital for supporting individuals with dementia living alone.
- Refusal of these services can lead to social isolation and reduced quality of life.
Purpose of the Study:
- To investigate the reasons behind the refusal of day services among people with dementia living alone.
- To assess the correlation between the willingness to use day services and specific clinical factors.
Main Methods:
- A qualitative interview-based study was conducted with 50 individuals diagnosed with dementia who lived independently and had previously declined day services.
- The Cornell Scale for Depression in Dementia was utilized to screen for depressive symptoms.
Main Results:
- Primary reasons for refusal included a perceived lack of need, a preference for solitude, and anticipation of unenjoyable experiences.
- Persistent refusal was associated with concerns about social interaction, loss of autonomy, and institutionalization.
- A significant proportion (54%) of participants exhibited scores indicative of potential major depression on the Cornell Scale.
Conclusions:
- Misconceptions regarding the benefits and nature of day services are significant barriers for individuals with dementia living alone.
- The high prevalence of depressive symptoms suggests that undiagnosed depression may be a key factor influencing service refusal and warrants further investigation.
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