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Updated: Jun 22, 2026
06:05
The Participant-Reported Implementation Update and Score (PRIUS): A Novel Method for Capturing Implementation-Related Data Over Time
Published on: February 19, 2021
Improving outcomes: update on progress.
1Leeds Teaching Hospitals Trust.
Paediatric Nursing
|June 10, 2009
Summary
National Institute for Health and Clinical Excellence (NICE) guidance improved pediatric cancer care across the UK and Ireland. Implementation faced challenges due to complexity, necessitating supplementary guidance for quality standards.
Area of Science:
- Pediatric Oncology
- Healthcare Policy
- Service Improvement
Background:
- In 2005, the National Institute for Health and Clinical Excellence (NICE) issued guidance to enhance outcomes for children and young people with cancer.
- The guidance, initially for England and Wales, has impacted service development throughout the United Kingdom and the Republic of Ireland.
Purpose of the Study:
- To assess the implementation progress of NICE guidance for pediatric cancer care.
- To identify challenges in implementing the guidance, particularly regarding shared care and services for teenagers and young adults.
- To introduce supplementary guidance to help meet quality standards.
Main Methods:
- Review of implementation progress of NICE guidance.
- Analysis of factors contributing to slower-than-anticipated progress.
- Development of supplementary guidance based on lessons learned.
Main Results:
- Implementation has been slower than expected due to the guidance's complexity and scope.
- Specific challenges identified in shared care models and services for teenagers and young adults.
- Supplementary guidance has been created to address implementation gaps and quality standards.
Conclusions:
- Lessons from improving pediatric cancer services can inform other specialist children's services.
- Continued efforts are needed to fully implement NICE guidance and achieve optimal outcomes.
- The complexity of comprehensive guidance requires phased implementation and ongoing support.
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