Related Experiment Video
Updated: Jun 22, 2026
14:32
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Effecting positive change with bereaved service users in a hospice setting
1Marie Curie Cancer Care, Marie Curie Hospice, Belfast, Ireland. audrey.agnew@mariecurie.org.uk
International Journal of Palliative Nursing
|June 23, 2009
Summary
This study involved bereaved service users in developing a hospice information leaflet. Their input ensured the leaflet met user needs, improving communication and avoiding tokenism in health and social care.
Area of Science:
- Health Services Research
- Patient Experience
- Qualitative Research
Background:
- User involvement is integral to health and social care planning and delivery.
- Effective communication systems are crucial for bereaved service users.
- Previous approaches risked consultation fatigue and tokenism.
Purpose of the Study:
- To understand service user experiences within an adult bereavement group.
- To inform the development of a bereavement information leaflet through user participation.
- To enhance communication systems for bereaved individuals in a hospice setting.
Main Methods:
- Qualitative study employing a focus group with seven purposively selected bereaved service users.
- Thematic content analysis of user experiences and recommendations.
- Development of a bereavement information leaflet based on user feedback.
Main Results:
- Service users shared valuable experiences and recommendations.
- User input directly informed the content and language of the new information leaflet.
- The process successfully engaged users without causing consultation fatigue.
Conclusions:
- Service user participation is vital for effective service development and delivery.
- Co-designing information resources ensures relevance and usability for bereaved individuals.
- This approach fosters genuine engagement and avoids superficial consultation in bereavement care.
Related Concept Videos
01:25Continuing Care
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
01:15Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch
The history of therapeutic communication can be traced back to Florence Nightingale, who emphasized the importance of developing trusting relationships with patients. She taught that the presence of nurses with patients results in therapeutic healing.
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
01:27Ethical Issues
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
01:30Ethical Dilemmas II
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
01:17Bonanno's Theory of Grieving
Grieving is a complex psychological and emotional process that varies significantly among individuals. George Bonanno's research on bereavement identified four distinct patterns of grieving, offering a nuanced understanding of how people cope with significant loss, such as the death of a spouse, over extended periods. These patterns — resilience, recovery, chronic dysfunction, and delayed grief — highlight the diversity in emotional responses and adaptive mechanisms.
Resilience
The resilience...
Resilience
The resilience...
01:21Kubler Ross's Stages of Dying
Elisabeth Kübler-Ross significantly advanced psychology's understanding of the process of dying with her influential book, On Death and Dying (1969). She focused on studying terminally ill individuals and outlined five stages commonly experienced when coping with death: denial, anger, bargaining, depression, and acceptance.
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from emotional distress. Anger...
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from emotional distress. Anger...