Indian transplant registry.

Area of Science:

• Medical research
• Health informatics

Background:

• The Indian Society of Organ Transplantation (ISOT), a 20-year-old organization with over 450 members, initiated the development of a national transplant registry.
• The establishment of this registry is a significant step towards centralizing organ transplant information in India.

Purpose of the Study:

• To create a centralized repository for organ transplant data across India.
• To systematically collect and analyze information on various transplant procedures performed nationwide.

Main Methods:

• The registry is currently in its first phase, focusing on capturing 'Fast Fact' retrospective short datasets.
• Data collected includes essential transplant program details such as yearly transplant numbers, sex ratios, and transplant types.
• Thirteen major institutions have contributed data to the registry in this initial phase.

Main Results:

• The registry has successfully begun collecting retrospective data on organ transplants from key institutions.
• Initial data captures fundamental metrics of transplant activity in India.

Conclusions:

• The Indian transplant registry, in its early developmental stages, shows promise for comprehensive data collection.
• Future phases will involve prospective data entry and advanced audit features, enhancing its utility for research and policy.