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Parent-child collaborative decision making for the management of chronic illness: a qualitative analysis
1Department of Anesthesiology and Critical Care Medicine, The Children's Hospital of Philadelphia and the University of Pennsylvania School of Medicine, Philadelphia, PA 19104, USA. millerv@email.chop.edu
Insights
Parent-child collaborative decision making (CDM) helps children with chronic illnesses gain independence. Factors like parental support and child maturity influence how effectively parents and children make health decisions together.
Area of Science:
- Pediatric Health
- Family Psychology
- Chronic Illness Management
Background:
- Collaborative decision making (CDM) is crucial for children's independence, especially in managing chronic illnesses.
- Understanding CDM from both child and parent perspectives is vital for effective healthcare.
Purpose of the Study:
- To explore the concept of parent-child collaborative decision making (CDM).
- To understand CDM from the viewpoints of children with chronic illnesses and their parents.
Main Methods:
- Qualitative study using focus groups and individual interviews.
- Involved children (ages 8-19) with asthma, type 1 diabetes, or cystic fibrosis and their parents.
Main Results:
- Participants described various collaboration methods, such as seeking opinions and sharing information.
- Collaboration was perceived as beneficial irrespective of who made the final decision.
- Identified predictors of CDM include parent/family factors, child characteristics, and decision context.
Conclusions:
- Findings offer insights into enhancing CDM for children with chronic illnesses.
- Suggests key areas for future quantitative research on parent-child health decision-making.
Abstract:
Parent-child collaborative decision making (CDM) is a potentially important precursor to full decision-making independence and may be particularly significant for the management of childhood chronic illnesses. The primary aim of this qualitative study was to explore the concept of CDM from the perspective of children and parents. Children (ages 8-19 years) with asthma, type 1 diabetes, or cystic fibrosis and parents of children with these illnesses participated in focus groups and individual interviews. Participants described various ways they collaborate with one another (e.g., asking for the other's opinion; providing information). Participants viewed collaboration as beneficial, regardless of who ultimately makes the decision. Several factors emerged as potential predictors of CDM, including parent/family factors (e.g., parental time; parent-child conflict), child factors (e.g., maturity; emotional/behavioral functioning), and decision/situation factors (e.g., seriousness of the decision; extent to which the child is experiencing symptoms). These data suggest ways to enhance collaborative decision-making interactions between children with a chronic illness and their parents, as well as several areas for future quantitative research.
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