[Talking about death to children with cancer]

M Hernández Núñez-Polo1, R Lorenzo González, E Catá del Palacio

  • 1Unidad de Onco-Hematología y Trasplante de progenitores hematopoyéticos, Hospital Infantil Universitario Niño Jesús, Madrid, España. psicooncohnjs@gmail.com

Insights

Children in palliative care have varying levels of awareness about their impending death. Younger children (3-6 years) often possess more information than older children (7-11 years), contrary to expectations, due to their conceptualization of death.

Area of Science:

  • Pediatric Oncology
  • Palliative Care
  • Child Psychology

Context:

  • Multidisciplinary care is crucial for pediatric cancer patients, especially during palliative phases.
  • Information provision is a key skill in managing end-of-life care for children.
  • Understanding children's awareness of their own death is vital for effective communication and support.

Purpose:

  • To explore the level of information children in palliative care possess regarding their own death.
  • To analyze the relationship between a child's age, their understanding of death, and parental communication.
  • To investigate how different developmental stages influence a child's perception and knowledge of mortality.

Summary:

  • A retrospective study of 45 pediatric oncology inpatients (2006-2007) examined psychosocial variables related to death awareness.
  • Findings indicate a complex relationship between age and information about death, with younger children (3-6 years) showing more awareness than older children (7-11 years).
  • Discrepancies between children's knowledge and parental disclosures highlight challenges in discussing end-of-life issues, potentially influenced by parental overprotection and differing death concepts.

Impact:

  • The study underscores the need for age-appropriate and sensitive communication strategies in pediatric palliative care.
  • Results suggest that a child's developmental stage and conceptualization of death significantly impact their understanding of terminal illness.
  • Highlights the importance of addressing parental communication barriers to ensure children receive adequate and honest information during their end-of-life journey.
Abstract

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