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Validating tumor linkage using the NAACCR site pairs table.
Deborah Bringman1, Jerri Linn Phillips, Judy Williams
1Department of Epidemiology, University of California, Irvine, Irvine, CA, USA.
Journal of Registry Management
|December 17, 2009
Summary
The Site Pairs Table helps cancer registries validate tumor linkage and find errors. Using this table identified potential inaccuracies in linking multiple tumors for patients, improving data quality.
Area of Science:
- Cancer Registry Science
- Biostatistics
- Data Management
Background:
- Central cancer registries manage patient data with multiple tumors and multiple reports for single tumors.
- Accurate tumor linkage is crucial for reliable cancer statistics and patient care.
- Existing methods for validating tumor linkage may require enhancement.
Purpose of the Study:
- To demonstrate the utility of the North American Association of Central Cancer Registries (NAACCR) Site Pairs Table for validating tumor linkage.
- To identify potential cases of inaccurate tumor linkage within central cancer registry databases.
- To assess the effectiveness of the Site Pairs Table in improving data accuracy.
Main Methods:
- Utilized the NAACCR Site Pairs Table to compare abstract pairs and tumor site pairs from three central cancer registries.
- Generated and analyzed tumor site pairs and abstract site pairs from patient data diagnosed between 1992-2003.
- Evaluated discrepancies between registry data and the Site Pairs Table to identify linkage errors.
Main Results:
- 97.4% of abstract site pairs were found in the Site Pairs Table; 2.6% required review, revealing linkage errors.
- 80% of tumor site pairs were not found in the Site Pairs Table, with further analysis identifying unique tumors and linkage inaccuracies.
- Review of identified potential linkage errors led to significant corrections, changing multiple tumors to single tumors in a high percentage of reviewed cases.
Conclusions:
- The Site Pairs Table is an effective tool for validating tumor linkage in central cancer registries.
- Analyzing site pairs using the Site Pairs Table aids in detecting and correcting inaccurate tumor linkages.
- Implementation of the Site Pairs Table can enhance the overall quality and reliability of cancer registry data.
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