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Information needs of parents of children with attention-deficit/hyperactivity disorder
Emma Sciberras1, Shobha Iyer, Daryl Efron
1Royal Children's Hospital, Victoria, Australia. emma.sciberras@mcri.edu.au
Insights
Parents of children with attention-deficit/hyperactivity disorder (ADHD) need continuous information. They prefer verbal guidance from professionals, despite accessing various sources like pediatricians and books.
Area of Science:
- Pediatric Health
- Neurodevelopmental Disorders
- Parental Support
Background:
- Attention-deficit/hyperactivity disorder (ADHD) significantly impacts children and their families.
- Effective parental support requires understanding their specific information needs.
Purpose of the Study:
- To identify and analyze the information needs of parents raising children with ADHD.
- To evaluate preferred information sources and delivery methods for this demographic.
Main Methods:
- A cross-sectional survey was conducted with 99 parents of children with ADHD in Victoria, Australia.
- Questionnaires assessed information sources used, perceived quality, important content, and preferred modes of delivery.
Main Results:
- Pediatricians were the most frequently accessed (89%) and highly rated information source.
- Parents prioritized information on causes and symptoms during diagnosis and preferred verbal delivery from professionals (69%).
Conclusions:
- Information provision for parents of children with ADHD is an ongoing necessity.
- While diverse sources are utilized, verbal communication from healthcare professionals is the preferred method for parents.
Objective:
To determine the information needs of parents of children with attention-deficit/hyperactivity disorder (ADHD).
Method:
A cross-sectional survey of parents recruited from pediatric hospital clinics, support groups, and newspaper advertisements in Victoria, Australia, was undertaken. Parents completed a questionnaire covering information sources accessed, the quality of this information, the information content they considered important and their preferred information modes.
Results:
Survey data were collected from 99 parents. Parents most frequently accessed information from pediatricians (89%), books (78%), general practitioners (65%), and schools (61%). Pediatricians were rated highest as a useful, trusted, easy-to-understand, and up-to-date information source. Parents placed most importance on causes and symptoms at the time of diagnosis. Parents preferred to receive verbal information from a professional (69%).
Conclusion:
Information provision for parents of children with ADHD is a continuous process. Although they access a range of sources and modes, parents prefer verbal information delivery.
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