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Chronic palliative care: specific practices for Alzheimer's disease sufferers
Jean-Christophe Mino1, Marie-Odile Frattini
1Palliative Care Unit, Pitié Salpêtrière Medical School Hospital, and National Center of Resources for Palliative Care FX Bagnoud, 6 avenue Lemierre, 75980 Paris Cedex 20, France.
Introduction:
In France, the government's plan to combat Alzheimer's disease takes into consideration mostly the beginnings of the disease; it does not deal with the sufferers' end of life. For this pathology, the very idea of a palliative care phase and its definition are not straightforward.
Method:
The object of this qualitative study was to clarify this idea through a series of interviews with 44 professionals.
Results:
The study describes three successive phases in the disease trajectory, revealed by changes in the logic of care: the stimulation phase, the chronic palliative care phase, and the terminal palliative phase.
Conclusion:
Alzheimer's disease has a specific phase of chronic palliative care. It presents, for professionals, several types of problems related to communication, pain, and feeding.
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