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How much do primary care givers know about tracheostomy and home ventilator emergency care?
Sheila S Kun1, Sally L Davidson-Ward, Linda M Hulse
1Division of Pediatric Pulmonology, Childrens Hospital Los Angeles, Keck School of Medicine of the University of Southern California, Los Angeles, CA 90027-6062, USA.
Insights
Primary caregivers of children on home mechanical ventilation (HMV) demonstrate good knowledge of emergencies. However, many lack understanding of specific ventilator alarms and tracheostomy issues, indicating a need for enhanced education.
Area of Science:
- Pediatric critical care
- Respiratory medicine
- Home healthcare
Background:
- Children requiring home mechanical ventilation (HMV) represent a vulnerable population.
- Primary caregivers (PC) are crucial for managing HMV emergencies at home.
- Assessing PC knowledge is vital for patient safety.
Purpose of the Study:
- To evaluate the knowledge of primary caregivers regarding emergency situations in children on HMV.
- To identify specific knowledge gaps in managing tracheostomy and ventilator-related emergencies.
Main Methods:
- A prospective study involving 152 primary caregivers (108 parents, 44 nurses).
- A 25-question survey was administered to assess knowledge of home HMV emergency care.
- Data analyzed for knowledge gaps related to ventilator alarms and tracheostomy issues.
Main Results:
- Primary caregivers achieved a mean score of 81% on the survey.
- Significant knowledge deficits were observed regarding low-pressure alarms during decannulation (63%) and understanding high-pressure alarms/mucous plugging (52%).
- Caregiver experience and professional training did not correlate with higher knowledge scores.
Conclusions:
- Most primary caregivers possess a foundational understanding of HMV emergency care.
- Targeted education on ventilator alarm functions and tracheobronchial mucous plugging is recommended.
- Enhancing caregiver education may reduce the incidence of emergencies in children on HMV.
Unlabelled:
Children on home mechanical ventilation are a high-risk population. How much do primary caregivers (PC) know about handling unexpected situations with tracheostomies or malfunction of their ventilators? To answer this, we prospectively studied the knowledge of 152 PC (108 parents and 44 nurses), using a 25-question survey regarding emergency situations at home.
Results:
their mean score was 20.2 correct answers (81%). However, 96 PC (63%) did not know that the low pressure ventilator alarm would not sound if the tracheostomy tube decannulated while still connected to the ventilator. Seventy-nine PC (52%) failed to understand high pressure alarms sound and mucous plugging. Sixty-six PC (43%) did not know how much power a battery stored after the suction machine was fully charged. Sixty-one PC (40%) did not know when the low pressure or low minute volume alarm sounds. Fifty-six PC (37%) relied on the ventilator alarm to determine the presence of mucous plugs. There were no significant differences in the scores of PC who used continuous flow ventilators, nor in English-speaking PC versus Spanish-speaking PC. The experience of the PC did not make a difference in their knowledge of HMV emergency care. Having professional training did not pose an advantage in the score for nurses. We conclude that most PC had a good understanding of emergency care. We speculate that more in depth education on the technical aspects of ventilator alarms and tracheal mucous plugging may help to reduce or prevent emergencies of children on HMV.
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