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Re-examining respect for human research participants
1Division of Cardiology, Emory University School of Medicine, Atlanta, GA, USA.
Respecting persons in clinical research involves more than just autonomy. This study re-examines respect for persons, highlighting appreciation, recognition of value, and expressive conduct as core elements for all participants.
Area of Science:
- Bioethics
- Clinical Research Ethics
- Philosophy of Medicine
Background:
- The ethical principle of respect for persons in clinical research is often narrowly interpreted as solely respecting autonomy.
- Existing frameworks may not fully capture the multifaceted nature of respecting individuals in research settings.
Purpose of the Study:
- To re-examine the concept of respect for persons beyond autonomy, drawing from ordinary language.
- To propose a broader account of respect for persons with implications for clinical research.
Main Methods:
- Conceptual analysis of the term "respect for persons" using ordinary language intuitions.
- Philosophical examination of the core components of respecting individuals.
Main Results:
- Respect for persons encompasses appreciating individual value, recognizing constraints on conduct, and acting expressively.
- Beyond autonomy, respect involves attending to subjective experiences, community roles, and comportment.
Conclusions:
- A richer understanding of respect for persons is crucial for ethical clinical research involving both autonomous and non-autonomous participants.
- This expanded view has distinct implications for participant well-being, particularly for vulnerable populations.
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