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Updated: Jun 14, 2026
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Translational Brain Mapping at the University of Rochester Medical Center: Preserving the Mind Through Personalized Brain Mapping
Published on: August 12, 2019
Symptom experience in patients with primary brain tumours: a longitudinal exploratory study
Alex Molassiotis1, Barbara Wilson, Lisa Brunton
1University of Manchester, School of Nursing, University Place, Manchester M13 9PL, UK. alex.molassiotis@manchester.ac.uk
Summary
Brain tumor patients face ongoing fatigue, memory loss, and driving difficulties impacting daily life. Patients adapt by making lifestyle changes, but unmet expectations can lead to dissatisfaction with healthcare.
Area of Science:
- Oncology
- Neuroscience
- Quality of Life Research
Background:
- Brain tumors significantly impact patients' daily lives and symptom experience.
- Understanding long-term effects is crucial for patient care and support.
Purpose of the Study:
- To explore the lived experience of symptoms in individuals undergoing brain tumor treatment.
- To investigate the impact of these symptoms on daily functioning and quality of life.
Main Methods:
- Qualitative prospective longitudinal study design.
- Interviews conducted with 9 participants at 4 time points over 12 months post-diagnosis.
- Total of 21 interviews analyzed.
Main Results:
- Persistent fatigue, memory deficits, and driving limitations were primary concerns.
- Patients exhibited fatalistic views regarding disease outcomes.
- Life adjustments included home modifications, exercise, and complementary therapies.
- Mismatched expectations between patients and healthcare professionals led to anger and dissatisfaction.
Conclusions:
- Quality of life is a critical concern for brain tumor patients with poor prognoses.
- Healthcare professionals should provide comprehensive information about expected symptoms and treatment effects.
- Assistance in managing debilitating symptoms like fatigue and cognitive impairment is essential.
