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Published on: January 11, 2016
Short-term changes in parents' resolution regarding their young child's diagnosis of cerebral palsy
I C M Rentinck1, M Ketelaar, C Schuengel
1Rehabilitation Centre De Hoogstraat, Centre of Excellence for Rehabilitation Medicine Utrecht, Utrecht, The Netherlands. i.rentinck@dehoogstraat.nl
Insights
Parental resolution regarding their child's cerebral palsy diagnosis remained stable for most, but resolution strategies evolved over one year, indicating an ongoing adjustment process.
Area of Science:
- Developmental Psychology
- Pediatric Health
- Family Studies
Background:
- Parental adjustment to a child's diagnosis is crucial.
- Cerebral palsy (CP) diagnosis presents unique challenges for families.
- Understanding the long-term parental response is vital for support.
Purpose of the Study:
- To examine changes in parental resolution status concerning their child's cerebral palsy diagnosis over one year.
- To identify shifts in the strategies parents employ to resolve their reactions to the diagnosis.
Main Methods:
- A longitudinal study followed 38 parents of young children diagnosed with cerebral palsy.
- The Reaction to Diagnosis Interview assessed parental resolution status and strategies at baseline and follow-up.
- Binominal tests analyzed changes at main and subclassification levels.
Main Results:
- Parental resolution status at the main level was predominantly stable, with 76% showing no change over one year.
- However, 24% of parents shifted between 'resolved' and 'unresolved' states.
- Among parents with a 'resolved' main status, 54% demonstrated changes in their specific resolution strategies.
Conclusions:
- Parental resolution regarding a child's cerebral palsy diagnosis is largely stable at a primary level.
- Despite stable main status, parents frequently adapt their resolution strategies over time.
- This suggests that parental resolution is a dynamic and continuous process, not a fixed endpoint.
Objective:
This study aimed to describe changes in parents' resolution regarding their young child's diagnosis of cerebral palsy over a period of 1 year, and to describe the changes in strategies of resolution.
Methods:
In this longitudinal study, 38 parents of children with cerebral palsy (mean age 18.4 months, SD = 1.1 at baseline) were followed with the Reaction to Diagnosis Interview, assessing their personal reactions to their child's diagnosis (i.e. resolution status). Changes at main and subclassification level of the Reaction to Diagnosis Interview were investigated using a binominal test.
Results:
Twenty-nine parents (76%) were found to be stable with respect to their main resolution status (i.e. 'resolved' or 'unresolved'), while 24% of the parents either had changed from 'unresolved' to 'resolved' or in the opposite way. Furthermore, of the 28 parents who were classified as 'resolved' at both times, 15 (54%) had changed at subclassification level with respect to the specific strategies used.
Conclusion:
Resolution at a main level of parental reactions to their child's diagnosis was predominantly stable. Most parents were classified as 'resolved' at both baseline and follow-up assessment. However, more detailed analyses at subclassification level showed that most parents with a 'resolved' main status showed changing patterns of resolution strategies to their child's diagnosis, suggesting that resolution is an ongoing process.
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