Providing support to siblings of hospitalised children

The purpose of this study was to describe child life services provided to siblings of hospitalised children and the resources associated with these services in major paediatric hospitals throughout the United States (U.S.) and Canada. Cross-sectional data on sibling support services and resources needed for capacity building were collected via a web-based survey from administrative and clinical practice leads in identified Child Life Departments. The 34-item survey targeted three domains: Facility Demography, Sibling Support Resources, and Capacity Building and Funding. Surveys were sent to 217 leads and 109 responded (50% response rate). Of the 109 respondents, 48% indicated their facilities provided sibling support including grief or palliative support (90% of facilities) and therapeutic play (94% of facilities). More than 50% indicated that these services were not evaluated for improved family or sibling outcomes. Twenty-six percent of the respondents indicated having monies earmarked for sibling support from the following sources: hospital budget (34%), private donation (25%), foundation (22%), other (14%) and government (4%). There was a significant relationship between respondents who indicated sibling support services and funding (chi(2)= 0.0001). Resources identified included staff availability and funding as needed for sibling support capacity building. Given the limited sibling support available in major paediatric hospitals across the U.S. and Canada, hospitals with existing resources should act as exemplars and evaluate the impact of their services with clear dissemination to other facilities. In addition to defining service effectiveness, this evaluation can help to determine the most fiscally responsible ways to deliver sibling support in their established facilities and others.