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Absorbing information about a child's incurable cancer
Patrizia Lannen1, Joanne Wolfe, Jennifer Mack
1Phyllis F. Cantor Center, Boston, MA, USA.
Oncology
|June 5, 2010
Summary
Parents receiving information about their child's incurable cancer in an appropriate manner were more likely to absorb it. This ability impacts end-of-life preparation for pediatric cancer patients.
Area of Science:
- Pediatric Oncology
- Bereavement Studies
- Psychological Oncology
Background:
- Communicating incurable cancer diagnoses to parents is challenging.
- Understanding parental reception of this information is crucial for supportive care.
Purpose of the Study:
- To evaluate parents' capacity to process the information that their child's cancer is incurable.
- To identify factors influencing parents' ability to absorb this difficult news.
Main Methods:
- A population-based, anonymous mail-in questionnaire study was conducted in Sweden.
- 449 parents who had lost a child to cancer 4-9 years prior completed the survey (80% response rate).
Main Results:
- 60% of parents reported absorbing the information about their child's incurable cancer.
- Appropriate information delivery, social support during illness, and no history of depression were associated with better absorption.
- Parents who absorbed the information were more likely to have achieved desired farewells.
Conclusions:
- Appropriate communication of incurable cancer diagnoses enhances parental absorption of this information.
- Parental ability to absorb this information has significant implications for preparing for a child's impending death.
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