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The caring continuum: role of the pediatric critical care advanced practice nurse in palliative care program
Riza V Mauricio1, Regina Okhuysen-Cawley
1The University of Texas MD Anderson Cancer Center, Department of Pediatrics, Houston, Texas 77030, USA. rmauricio@mdanderson.org
Insights
Establishing a caring continuum for children nearing end-of-life involves expanding interventions across intensive care units (ICUs), general pediatric units, and clinics. This requires a critical care advanced practice nursing team for coordinated, complex care.
Area of Science:
- Pediatric Palliative Care
- Advanced Practice Nursing
- Healthcare Systems Integration
Background:
- Children nearing end-of-life require specialized, continuous care.
- Current care models may be fragmented across different healthcare settings.
- The need for integrated, multidisciplinary support is critical.
Purpose of the Study:
- To propose a framework for a caring continuum for children at end-of-life.
- To identify key components for enhancing care across diverse pediatric settings.
- To emphasize the role of advanced practice nursing in coordinating complex care.
Main Methods:
- Conceptual framework development.
- Review of existing pediatric end-of-life care models.
- Emphasis on interdisciplinary team collaboration.
Main Results:
- A comprehensive caring continuum can be achieved by expanding intervention scope.
- Integration of critical care advanced practice nursing teams is essential.
- Close interdisciplinary coordination facilitates complex care delivery.
Conclusions:
- A seamless caring continuum for pediatric end-of-life care is achievable.
- Broadening interventions and interdisciplinary coordination are key.
- Advanced practice nursing is pivotal in delivering integrated, compassionate care.
Abstract:
A caring continuum to children at the close of life can be established by broadening the scope of intervention available to these children in the ICU, general pediatric unit, and the clinic with critical care based advanced practice nursing team, providing close interdisciplinary coordination of complex care.
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Physicians
The physician's primary responsibility is to diagnose illness and direct the medical or surgical treatment of the condition. The authority to admit patients to a healthcare agency or institution and practice care within that setting is granted to physicians by the healthcare agency or institution itself.