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The caring continuum: role of the pediatric critical care advanced practice nurse in palliative care program

Riza V Mauricio1, Regina Okhuysen-Cawley

  • 1The University of Texas MD Anderson Cancer Center, Department of Pediatrics, Houston, Texas 77030, USA. rmauricio@mdanderson.org

Insights

Establishing a caring continuum for children nearing end-of-life involves expanding interventions across intensive care units (ICUs), general pediatric units, and clinics. This requires a critical care advanced practice nursing team for coordinated, complex care.

Area of Science:

  • Pediatric Palliative Care
  • Advanced Practice Nursing
  • Healthcare Systems Integration

Background:

  • Children nearing end-of-life require specialized, continuous care.
  • Current care models may be fragmented across different healthcare settings.
  • The need for integrated, multidisciplinary support is critical.

Purpose of the Study:

  • To propose a framework for a caring continuum for children at end-of-life.
  • To identify key components for enhancing care across diverse pediatric settings.
  • To emphasize the role of advanced practice nursing in coordinating complex care.

Main Methods:

  • Conceptual framework development.
  • Review of existing pediatric end-of-life care models.
  • Emphasis on interdisciplinary team collaboration.

Main Results:

  • A comprehensive caring continuum can be achieved by expanding intervention scope.
  • Integration of critical care advanced practice nursing teams is essential.
  • Close interdisciplinary coordination facilitates complex care delivery.

Conclusions:

  • A seamless caring continuum for pediatric end-of-life care is achievable.
  • Broadening interventions and interdisciplinary coordination are key.
  • Advanced practice nursing is pivotal in delivering integrated, compassionate care.

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