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Information-seeking at a caregiving website: a qualitative analysis
Leslie P Kernisan1, Rebecca L Sudore, Sara J Knight
1Division of Geriatrics, University of California San Francisco, San Francisco, CA 94121, USA. lkernisan@gmail.com
Journal of Medical Internet Research
|August 3, 2010
Summary
Family caregivers of elders seek practical, medical, and emotional support online. Websites should offer comprehensive resources for complex caregiving situations and caregiver well-being.
Area of Science:
- Gerontology
- Health Informatics
- Sociology of Health
Background:
- The internet is a primary source for health information.
- Online activity of family caregivers for elders is under-researched.
- A growing population of
- e-caregivers
- exists.
Purpose of the Study:
- To understand information-seeking behaviors of elder-care website visitors.
- To identify themes for improving online caregiving resources.
- To inform future eHealth development for caregivers.
Main Methods:
- Qualitative analysis of survey data from an elder-care website (March 2008-March 2009).
- 1467 detailed free-text responses to "What were you looking for?" were analyzed.
- Content analysis identified information categories and overarching themes.
Main Results:
- Respondents sought health information, practical caregiving advice, and emotional support.
- Information needs included housing, legal, insurance, and financial issues.
- Key themes: need for practical skills and help interpreting symptoms/behavior.
Conclusions:
- Elder-care website visitors need diverse information and support for complex caregiving.
- Caregivers require help with skills, interpreting health conditions, and emotional support.
- Healthcare providers and eHealth developers must recognize and support caregivers' online resource use.
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