Related Experiment Videos
"We Talk About Everything": Experiences with Digital Health Communication in Palliative Care
Sarah Nouri1, Courtney R Lyles2, Carly Zapata1
1Department of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.
Background:
Use of digital communication tools (e.g., telehealth, patient portals) is increasing in outpatient palliative care (OPC).
Objective:
Assess patient/caregiver experiences with digital communication tools.
Design:
Qualitative.
Setting/Subjects:
Inclusion criteria were age ≥18 years, English/Spanish/Cantonese-speaking, and ≥1 telehealth OPC visit in the prior year. If patients could not converse by phone, we interviewed their caregivers.
Measures:
We developed an interview guide using the Capability-Opportunity-Motivation-Behavior framework. We analyzed semi-structured interviews using thematic analysis.
Results:
Among 32 participants, 10 were caregivers, 11 Spanish-speaking, 9 Cantonese-speaking. Theme 1: Video and in-person visits have important and distinct roles. Theme 2: Establishing a trusting rapport over video is possible. Theme 3: Engagement can be high with the patient portal despite poor usability.
Conclusions:
A flexible approach offering both video and in-person visits is ideal. Usability is a key factor in patient portal engagement. Our findings underscore the need to advocate for a permanent Medicare telehealth extension.
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