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Palliative care for people with dementia
1Research Department of Mental Health Sciences, University College Medical School, Hampstead Campus, Rowland Hill Street, London, UK. e.sampson@medsch.ucl.ac.uk
British Medical Bulletin
|August 3, 2010
Summary
Dementia is a terminal illness with poor end-of-life care access. More research is needed on palliative care effectiveness for dementia patients and their families.
Area of Science:
- Gerontology
- Palliative Care
- Neurology
Background:
- Dementia prevalence is rising, with one in three seniors dying with the condition.
- Advanced dementia is increasingly viewed as a terminal illness, comparable to advanced cancer in symptom burden and prognosis.
- Individuals with dementia often experience inadequate access to high-quality end-of-life care.
Purpose of the Study:
- To review current end-of-life care practices for people with dementia.
- To identify gaps in research regarding palliative care interventions for advanced dementia.
- To assess the evidence for interventions like enteral feeding in dementia.
Main Methods:
- A PubMed search was conducted using MeSH terms for 'dementia' and 'palliative care', including specific terms like 'enteral feeding'.
- National reports, UK guidelines, and relevant policies were also reviewed.
- Literature was analyzed to evaluate the effectiveness of current interventions and the need for further research.
Main Results:
- Interventions such as antibiotics, fever management policies, and enteral tube feeding are frequently used despite limited evidence of improving quality of life or outcomes.
- There is a significant disparity between the perception of advanced dementia as a terminal illness and the provision of appropriate palliative care.
- Current practices may not align with the needs of individuals with advanced dementia or their families.
Conclusions:
- Further research is essential to evaluate the effectiveness of holistic palliative care models in dementia.
- Outcome measures for palliative care in dementia require further development and validation.
- The impact of end-of-life care decisions on carers and families of people with dementia needs comprehensive investigation.
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