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Updated: Jun 10, 2026

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Published on: February 2, 2024
Growing older with cerebral palsy: insiders' perspectives
Marylyn Horsman1, Melinda Suto, Brian Dudgeon
1Department of Occupational Science & Occupational Therapy, Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
Adults with cerebral palsy (CP) experience earlier functional decline. Awareness, acceptance, and action help them cope with aging and improve quality of life.
Area of Science:
- Gerontology
- Developmental Disabilities
- Rehabilitation Medicine
Background:
- Cerebral palsy (CP) is a lifelong condition.
- Adults with CP face accelerated functional ability loss compared to able-bodied peers.
- Understanding the aging experience in CP is crucial for long-term care.
Purpose of the Study:
- To explore the lived experiences of adults aging with cerebral palsy.
- To identify challenges and coping mechanisms associated with aging with CP.
- To inform developmental therapists about the long-term needs of individuals with CP.
Main Methods:
- Descriptive phenomenology was employed.
- In-depth, semistructured interviews were conducted.
- Open-ended questions focused on aging experiences, understanding, coping, and meaning.
Main Results:
- A central theme of "Awareness, Acceptance, and Action" emerged.
- Participants recognized accelerated physical deterioration compared to peers.
- Acceptance of changes facilitated proactive measures to enhance quality of life.
Conclusions:
- Findings offer insights for pediatric therapists working with children with CP.
- Understanding the aging trajectory is vital for lifelong care planning.
- Therapeutic interventions should consider the evolving needs of adults with CP.
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