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Communicating disclosure risk in informed consent statements.

Eleanor Singer¹, Mick P Couper

¹Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor, MI 48106, USA. esinger@isr.umich.edu

Journal of Empirical Research on Human Research Ethics : JERHRE

|September 14, 2010

Summary

Survey topic sensitivity and potential harms significantly influence participation willingness. Clear communication about disclosure risk in informed consent does not affect survey participation rates.

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Area of Science:

Social Sciences
Survey Methodology
Risk Communication

Background:

Communicating disclosure risk and harm is crucial for survey participation.
Previous research explored how different communication strategies affect respondent willingness.

Purpose of the Study:

To determine how communicating disclosure risk and harm affects survey participation willingness.
To test the impact of specific wording in informed consent statements on participation.

Main Methods:

Conducted experiments using vignettes with online panels and mail surveys with national samples.
Manipulated descriptions of disclosure risk, survey topic sensitivity, and potential harms.

Main Results:

Survey topic sensitivity and explicit mention of harms significantly decrease participation willingness.
The precise wording of confidentiality assurances had minimal impact on stated willingness.
Experimental manipulations influenced perceptions of risks and benefits.

Conclusions:

Survey topic and potential harms are key factors influencing participation.
Researchers should balance providing adequate information without causing unnecessary alarm.
Effective risk communication strategies need further investigation.