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Cancer Registry and Epidemiological Study Working Group report
Tomotaka Sobue1, Manami Inoue, Hideo Tanaka
1Division of Cancer Information and Surveillance Division, National Cancer Center, 5-1-1 Tsukiji, Chuo-ku, Tokyo 104-0045, Japan. tsobue@ncc.go.jp
Establishing a unified Asian cancer registry organization is crucial for improving cancer data quality and enabling collaborative epidemiological studies across the region. This initiative aims to overcome existing challenges in cancer registration and research.
Area of Science:
- Oncology
- Epidemiology
- Public Health
Background:
- The International Agency for Research on Cancer (IARC) is a key global resource for cancer information and maintains the largest database on cancer incidence.
- Many Asian countries have established cancer registries, but significant gaps remain, particularly in nations like Indonesia and Bangladesh.
- The International Association of Cancer Registries (IACR) facilitates international information exchange and supports cancer registries globally.
Purpose of the Study:
- To highlight the challenges faced by cancer registries in Asia.
- To emphasize the importance of cooperative and comparative epidemiological studies for cancer control in the region.
- To propose the establishment of an Asian organization for cancer registration cooperation.
Main Methods:
- Review of existing cancer registration practices and data availability in Asian countries.
- Analysis of the requirements for successful multinational collaborative epidemiological studies.
- Identification of barriers to effective cancer research collaboration in Asia.
Main Results:
- Cancer registration in Asia is hindered by issues such as poor data quality, inadequate infrastructure, and limited coverage.
- Epidemiological studies are constrained by disparities in expertise, resources, and understanding of epidemiological principles.
- Existing collaborative efforts like the Asia Cohort Consortium demonstrate the complexity of multinational research.
Conclusions:
- An organization dedicated to Asian cooperation on cancer registration is needed to address current limitations.
- Sufficient funding for cancer registries and related activities is essential for progress.
- Collaborative and comparative epidemiological studies utilizing cancer registry data are vital for advancing cancer control strategies in Asia.
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