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A patient advocate's perspective on patient-centered comparative effectiveness research
1Partnership to Improve Patient Care, Washington, DC, USA. tcoelho@improvepatientcare.org
Health Affairs (Project Hope)
|October 6, 2010
Summary
The Patient Protection and Affordable Care Act established patient-centered outcomes research, emphasizing patient engagement and personalized medicine. This framework supports comparative effectiveness research for better healthcare outcomes.
Area of Science:
- Health Policy
- Medical Research
- Patient Advocacy
Background:
- The Patient Protection and Affordable Care Act introduced patient-centered outcomes research (PCOR).
- The author is a former US House Representative, epilepsy patient, and advocate involved in health reform.
- Personal experience informs the perspective on PCOR implementation.
Purpose of the Study:
- To provide perspective on the policy framework for patient-centered comparative effectiveness research (CER) established by the Affordable Care Act.
- To highlight key elements necessary for successful PCOR implementation.
Main Methods:
- The commentary draws on the author's legislative and patient advocacy experiences.
- Analysis of the policy framework created by the health reform law for CER.
Main Results:
- The law provides a policy framework for patient-centered CER.
- Key elements include stakeholder engagement (especially patients), personalized medicine, transparency, a broad research agenda, and effective communication.
Conclusions:
- The established framework supports patient-centered comparative effectiveness research.
- Meaningful patient engagement and personalized medicine are crucial for advancing healthcare.
- Effective communication of research results is essential for patient benefit.
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