Management challenges in children with both epilepsy and intellectual disability

Area of Science:

• Neurology
• Developmental Disabilities
• Nursing Practice

Background:

• Co-occurrence of epilepsy and intellectual disability presents significant healthcare management challenges.
• Clinical nurse specialists (CNS) are positioned to support individuals with these dual diagnoses and their families.
• Effective management requires addressing multifaceted issues beyond basic medical care.

Purpose of the Study:

• To describe factors associated with intellectual disability and epilepsy.
• To identify management challenges in seizure control, prescription adherence, and overall life management for this population.
• To propose strategies for CNS to enhance patient and family management skills.

Main Methods:

• Literature review and synthesis of factors contributing to intellectual disability and epilepsy.
• Analysis of management challenges categorized into seizure/prescription management, non-prescription seizure management, and life management.
• Development of recommendations for clinical nurse specialists' interventions.

Main Results:

• Identified key factors contributing to the dual diagnosis.
• Detailed specific challenges in medication management, non-pharmacological seizure control, and daily life adjustments.
• Highlighted the critical role of CNS in skill development and support.

Conclusions:

• Clinical nurse specialists play a vital role in improving outcomes for individuals with epilepsy and intellectual disability.
• Targeted interventions focusing on self-management and family support are essential.
• Addressing holistic life management issues is crucial for enhancing quality of life.