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The right to withdraw from research.

G Owen Schaefer1, Alan Wertheimer

  • 1Faculty of Philosophy, St. Cross College, University of Oxford, UK.

Kennedy Institute of Ethics Journal
|February 23, 2011
PubMed
Summary
This summary is machine-generated.

Participants in human subject research have a right to withdraw. This right protects individuals from imbalances and uncertainties, fostering public trust in research integrity.

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Area of Science:

  • Bioethics
  • Research Ethics
  • Human Subject Protection

Background:

  • The right to withdraw from research participation is globally accepted in human subject research guidelines.
  • Despite widespread recognition, the ethical justification for this right remains underexplored in academic literature.

Purpose of the Study:

  • To provide a robust ethical justification for the right of research participants to withdraw.
  • To delineate specific harms the right to withdraw is designed to prevent.
  • To enhance public trust in the research enterprise through clear articulation of participant rights.

Main Methods:

  • Ethical analysis of the right to withdraw in research contexts.
  • Examination of potential harms to participants, including information imbalance, hedging inability, inherent uncertainty, and bodily invasion.
  • Argumentation for the role of the right to withdraw in maintaining public confidence.

Main Results:

  • The right to withdraw safeguards participants against specific vulnerabilities inherent in research participation.
  • It addresses information asymmetry, the inability to hedge against risks, unavoidable uncertainties, and intrusive research procedures.
  • The right to withdraw is crucial for building and maintaining public trust in scientific research.

Conclusions:

  • The right to withdraw is essential for protecting research participants from unique research-related harms.
  • A clear ethical framework for the right to withdraw can guide its application in diverse research scenarios.
  • Upholding the right to withdraw is vital for the ethical integrity and public acceptance of human subjects research.