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Rapid Detection of Neurodevelopmental Phenotypes in Human Neural Precursor Cells (NPCs)

Rapid Detection of Neurodevelopmental Phenotypes in Human Neural Precursor Cells (NPCs)

Published on: March 2, 2018

Evidence-based neuroethics for neurodevelopmental disorders.

Eric Racine¹, Emily Bell, Nina C Di Pietro

¹Neuroethics Research Unit, Institut de recherches cliniques de Montréal, Montreal, Quebec, Canada. eric.racine@ircm.qc.ca

Seminars in Pediatric Neurology

|May 18, 2011

Summary

This study introduces a practical framework for ethical research in neurodevelopmental disorders like cerebral palsy, autism, and fetal alcohol spectrum disorder. It addresses challenges in translating ethical research into clinical care for children.

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Area of Science:

Neuroscience
Bioethics
Developmental Pediatrics

Background:

Neurodevelopmental disorders significantly impact individuals, families, and society.
Understanding the ethical dimensions of research and clinical care is crucial for improving outcomes.
Existing research often faces challenges in translating findings into practical applications for patients.

Purpose of the Study:

To present a pragmatic, evidence-based framework for empirical ethics inquiry in neurodevelopmental disorders research.
To explore the unique ethical challenges associated with cerebral palsy (CP), autism spectrum disorder (ASD), and fetal alcohol spectrum disorder (FASD).
To facilitate the translation of ethically sound research into clinical practice for neonates and children.

Main Methods:

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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Published on: August 25, 2014

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Rapid Detection of Neurodevelopmental Phenotypes in Human Neural Precursor Cells (NPCs)

Rapid Detection of Neurodevelopmental Phenotypes in Human Neural Precursor Cells (NPCs)

Published on: March 2, 2018

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Published on: August 25, 2014

Development of a pragmatic, evidence-based framework for ethics inquiry.

Case studies illustrating pragmatic neuroethics in practice.

Identification and discussion of specific ethical challenges in CP, ASD, and FASD.

Main Results:

A structured approach to conducting empirical ethics research in neurodevelopmental disorders.
Detailed examination of ethical issues including healthcare delivery in CP, neonatal decision-making, alternative therapies, and personhood.
Highlighting intersecting challenges across different neurodevelopmental conditions.

Conclusions:

The proposed framework supports ethical research and clinical translation for neurodevelopmental disorders.
Addressing ethical complexities is vital for improving care for children with CP, ASD, and FASD.
Pragmatic neuroethics offers a pathway to navigate complex ethical landscapes in pediatric neurodevelopmental research and practice.