Development of a bladder management protocol as part of a comprehensive care program for spina bifida in Kenya

Kimberly Augenstein1, Virginia Simson Nelson, Agnes Jeruto Kogei

  • 1Munson Medical Center, Traverse City, MI, USA AIC CURE Children's Hospital of Kenya/Bethany Kids at Kijabe Hospital, Kijabe, Kenya.

Insights

A nurse-led bladder management program using clean intermittent catheterization (CIC) in Kenya significantly improved renal function and continence for children with spina bifida, reducing deaths from renal complications.

Area of Science:

  • Pediatric Urology
  • Nephrology
  • Global Health

Background:

  • Neurogenic bladders are common in children with spina bifida, leading to high rates of renal failure and mortality.
  • Historically, lack of clean intermittent catheterization (CIC) in developing countries exacerbates these outcomes.
  • Renal complications remain a leading cause of death in spina bifida patients without adequate bladder management.

Purpose of the Study:

  • To evaluate the effectiveness of a nurse-run bladder management program utilizing CIC in a developing country setting.
  • To assess the impact of CIC on renal function and social continence in children with spina bifida.
  • To determine the feasibility of implementing such a program in resource-limited environments.

Main Methods:

  • A comprehensive spina bifida program in Kenya was established, managed by nurses.
  • Bladder function was assessed using leak point pressure (LPP).
  • Clean intermittent catheterization (CIC) was initiated for children with LPP >30 cm water or those requiring social continence.

Main Results:

  • Out of 371 children evaluated, 167 were initiated on CIC.
  • Only 3 deaths were attributed to renal complications among the 72 deceased patients.
  • 45 out of 59 children aged 5 and older achieved social continence.

Conclusions:

  • A nurse-led bladder management program incorporating CIC is effective in improving renal outcomes and continence for children with spina bifida in developing countries.
  • This model demonstrates successful implementation in resource-limited settings.
  • The program significantly reduces mortality associated with renal complications in this vulnerable population.

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