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The Multiple Sclerosis Performance Test (MSPT): An iPad-Based Disability Assessment Tool
11:35

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Published on: June 30, 2014

Functioning and disability in multiple sclerosis from the patient perspective.

Michaela Coenen1, Birgit Basedow-Rajwich, Nicolaus König

  • 1Institute for Health and Rehabilitation Sciences, Research Unit for Biopsychosocial Health, Ludwig-Maximilians-University (LMU), Munich, Germany.

Chronic Illness
|August 16, 2011
PubMed
Summary
This summary is machine-generated.

Multiple sclerosis significantly impacts daily life and functioning. This study captures patient experiences, detailing affected areas and environmental influences for a comprehensive understanding of disability.

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Qualitative Health Research

Background:

  • Multiple sclerosis (MS) profoundly affects patient functioning and disability.
  • Understanding the lived experience is crucial for a holistic view of MS.
  • Patient perspectives are vital for comprehensive health assessments.

Purpose of the Study:

  • To describe functioning and disability in MS from the patient viewpoint.
  • To identify contextual factors influencing life with MS.
  • To integrate patient-reported outcomes into health classifications.

Main Methods:

  • Qualitative study utilizing focus group methodology.
  • Data analysis through meaning condensation.
  • Concepts linked to the International Classification of Functioning, Disability and Health (ICF).

Main Results:

  • Six focus groups with 27 participants were conducted.
  • 1327 concepts were identified and mapped to 106 ICF categories.
  • Key ICF components included Body Functions, Activities and Participation, and Environmental Factors.

Conclusions:

  • This study provides critical insights into MS impact on functioning and disability from the patient perspective.
  • It highlights the physical and daily life areas affected by MS.
  • Environmental factors significantly influence the experience of living with MS.