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No place like the hospital.
Muriel R Gillick1, James E Sabin
1Harvard Pilgrim Health Care Institute, Boston, Massachusetts 02215, USA. mgillick@partners.org
Journal of Pain and Symptom Management
|September 6, 2011
Summary
Home hospice is ideal for end-of-life care. This case examines ethical issues when a patient with metastatic cancer refused hospice, preferring hospital care, despite available alternatives.
Area of Science:
- Palliative Care
- Medical Ethics
- Oncology
Background:
- Home hospice is the recognized standard for end-of-life care.
- Advance care planning and patient preferences are crucial in terminal illness.
- Hospital-based palliative care services have expanded to improve inpatient end-of-life experiences.
Observation:
- A patient with metastatic cancer and small bowel obstruction refused available home hospice and skilled nursing facility options.
- The patient insisted on remaining in an acute care hospital for terminal care.
- Ethical considerations involved patient autonomy, clinical team responsibilities, hospital policy, and insurance coverage.
Findings:
- Patient's insistence on hospital care highlights potential conflicts between patient wishes and optimal end-of-life care settings.
- Ethical dilemmas arise concerning patient autonomy versus the principles of palliative and hospice care.
- The availability and accessibility of insurance-covered hospice services did not alter the patient's preference for hospital-based care.
Implications:
- Increased demand for hospital-based terminal care may arise as palliative services improve inpatient dying experiences.
- Healthcare systems must navigate complex ethical issues when patient preferences diverge from established care standards.
- Further research is needed on patient decision-making regarding end-of-life care settings and the role of hospital palliative care.
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