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Parents know best: or do they? Treatment refusals in paediatric oncology
1Department of Haematology/Oncology, Princess Margaret Hospital for Children and the School of Paediatrics and Child Health, University of Western Australia, Perth, Western Australia, Australia. angela.alessandri@health.wa.gov.au
Insights
Treatment refusal in pediatric oncology threatens patient-physician relationships. The harm principle can guide oncologists when considering judicial intervention for cases involving unsubstantiated therapies.
Area of Science:
- Pediatric Oncology
- Medical Ethics
- Family Law
Background:
- Treatment refusal by families in pediatric oncology, though infrequent, can disrupt the therapeutic relationship.
- Parental decision-making authority in medical settings is significant but not absolute.
- The rise of 'natural therapies' may increase future refusals of evidence-based cancer treatments.
Abstract:
Although treatment refusal is an infrequent occurrence in paediatric oncology, it is an important issue that threatens the ongoing therapeutic relationship between the health-care team and families. While there are good reasons to support the decision-making authority of parents in the medical setting, parents' rights in this respect are not absolute. Fortunately, most disagreements between clinicians and parents regarding treatment decisions for children are resolved within the health-care team/family dyad or with the objective advice of other clinicians or clinical ethics services. The increasing appeal of 'natural therapies' and unsubstantiated confidence with which they are prescribed may lead to more frequent refusal of conventional, evidence-based oncology treatment in the future. The harm principle may assist paediatric oncologists in the difficult task of determining when it is justifiable to refer a case for judicial intervention.
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