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Updated: May 28, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
Keeping children with congenital heart disease healthy
1University of Texas Health Science Center–San Antonio, San Antonio, TX, USA. woodwardc@uthscsa.edu
Insights
Nurse practitioners play a key role in managing the health of children with congenital heart disease. They provide essential care before, between, and after surgeries, focusing on development, nutrition, and preventing complications.
Area of Science:
- Pediatric Cardiology
- Nursing Practice
- Public Health
Background:
- Congenital heart disease (CHD) significantly impacts children's long-term health and quality of life.
- Effective management is crucial for survival and well-being.
- Nurse practitioners (NPs) are well-positioned to provide continuous care for these children.
Observation:
- Primary care visits for children with CHD should include assessments for developmental morbidity.
- Children with hemodynamically significant heart disease require timely referral for specialized evaluations and interventions.
- Infants with CHD may present with feeding difficulties, necessitating nutritional support.
- Preventive measures such as immunizations and prophylaxis against infections are vital.
Findings:
- NPs can optimize care for children with CHD by addressing developmental, nutritional, and preventive health needs.
- Early identification and intervention for developmental issues and feeding problems are critical.
- Proactive management of immunizations and infectious disease prevention reduces complications.
Implications:
- Enhanced NP roles in primary care can improve health outcomes for children with CHD.
- Integrated care models involving NPs can lead to better long-term survival and quality of life for pediatric patients.
- Focusing on comprehensive care, including developmental and nutritional support, is essential for this high-risk population.
Abstract:
Keeping children with congenital heart disease healthy is vital to their long-term survival and quality of life. Nurse practitioners are in an excellent position to keep these sometimes fragile children healthy before, between, and after their cardiac surgeries. Primary care visits should address developmental morbidity. Referral for in-depth evaluations and intervention should be initiated for children with hemodynamically significant heart disease. Infants may also experience poor feeding. Nutritional guidance may include fortifying formulas or enteral tube feedings. Attention to immunization status and prevention of winter illnesses and endocarditis may reduce complications in this high-risk group of children.
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