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Drawing attention to difference: dilemmas in discussing dysmorphism with parents
1Genetic Health Services Victoria Genetics Education and Health Research, Royal Children's Hospital, Parkville, Melbourne, Victoria, Australia. sue.white@ghsv.org.au
Abstract:
Dysmorphism is a sensitive topic to discuss with parents. Discussing dysmorphism requires careful thought, awareness of parent reactions, practice and reflection. Clinical practice suggests that barriers exist for both parents and health professionals, which make these discussions challenging. Here, we explored the challenges inherent in dialogue about dysmorphism and offer suggestions for communication strategies that are grounded in both theory and practice.
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