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Coping with multiple sclerosis as a couple: 'peaks and troughs' - an interpretative phenomenological exploration
Pauline Boland1, William M M Levack, Sheena Hudson
1Rehabilitation Teaching and Research Unit, University of Otago, Wellington, New Zealand. pauline.boland@otago.ac.nz
Couples coping with Multiple Sclerosis (MS) experience shared challenges and resilience, emphasizing mutual faith and long-term adaptation. Understanding these dynamics aids in providing effective support for individuals and their partners navigating MS.
Area of Science:
- Health Psychology
- Couple Dynamics
- Chronic Illness Management
Background:
- Multiple Sclerosis (MS) presents significant challenges due to illness uncertainty.
- Effective coping strategies for individuals with MS often involve their partners.
- Limited understanding exists regarding couple-based coping mechanisms in MS.
Purpose of the Study:
- To explore how couples, where one partner has MS, experience coping with the condition.
- To gain insight into the interconnected coping processes within these relationships.
Main Methods:
- Utilized Interpretative Phenomenological Analysis (IPA).
- Conducted semi-structured interviews with seven couples affected by MS.
- Focused on lived experiences of coping as a couple.
Main Results:
- Identified overarching themes of "Coping Together: Peaks and Troughs" and "Coping Over the Long Haul."
- Discovered integrative themes of "Faith in Self" and "Faith in Each Other."
- Highlighted the interconnected nature of coping within couples facing MS.
Conclusions:
- Findings enhance clinicians' understanding of couple-based coping in MS.
- Emphasizes the need for sensitivity to individual and relational coping strategies.
- Informs rehabilitation approaches by addressing the evolving needs of couples affected by MS.
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