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Related Experiment Video

Updated: May 2, 2026

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Development and evaluation of a stroke research Public Patient Involvement Panel.

Siobhán O'Reilly1,2, Aoife Whiston1, Aine Cronin3

  • 1School of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.

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Developing a public and patient involvement (PPI) panel in stroke rehabilitation research is crucial. This study explores stakeholder experiences, identifying barriers and enablers for effective PPI in stroke research.

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Area of Science:

  • Rehabilitation Medicine
  • Health Services Research
  • Patient and Public Involvement (PPI)

Background:

  • Public and patient involvement (PPI) is vital in stroke research to align studies with the needs of stroke survivors.
  • Factors such as research location and time commitment can influence PPI effectiveness.
  • Rising stroke incidence leads to significant physical, cognitive, and emotional challenges for survivors.

Purpose of the Study:

  • To describe the development of a PPI panel and a healthcare professional panel for stroke rehabilitation research.
  • To explore the perspectives of PPI group members regarding their involvement in the research process.

Main Methods:

  • Formation of a stakeholder panel (up to 20 members: stroke survivors, public, healthcare professionals).
  • Recruitment via pragmatic purposive sampling with snowball technique.
  • Four panel meetings guided by INVOLVE framework, with members acting as co-researchers.
  • Semi-structured focus groups for qualitative data collection on participant perspectives.
  • Data analysis using Braun and Clarke's Reflexive Thematic Analysis.

Main Results:

  • The study will yield themes and subthemes detailing participants' experiences and opinions on PPI in stroke rehabilitation research.
  • Insights into the facilitators and obstacles encountered by stakeholders participating in PPI.

Conclusions:

  • Public and patient involvement is integral to stroke research, offering valuable insights into research processes.
  • This qualitative study will illuminate key factors influencing successful PPI in stroke rehabilitation research.