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Updated: May 25, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Transition to neonatal follow-up programs: is attendance a problem?
Marilyn Ballantyne1, Bonnie Stevens, Astrid Guttmann
1Faculty of Health Sciences, School of Nursing, McMaster University, 1280 Main Street W., Hamilton, Ontario, Canada. mballan@mcmaster.ca
Insights
Many high-risk infants miss crucial neonatal follow-up (NFU) appointments after leaving the neonatal intensive care unit (NICU). Improving attendance requires early identification of at-risk mothers and addressing barriers to care.
Area of Science:
- Neonatal care
- Developmental pediatrics
- Public health
Background:
- Neonatal follow-up (NFU) programs are vital for infants at high risk for developmental issues post-neonatal intensive care unit (NICU) discharge.
- Understanding attendance patterns and withdrawal points is crucial for optimizing these essential services.
Purpose of the Study:
- To assess current patterns of NFU program attendance.
- To identify critical time points of mother and infant withdrawal from NFU programs within the first year of life.
Main Methods:
- Study conducted in 3 Canadian tertiary NICUs referring to 2 regional NFU programs.
- 357 mothers and 400 infants consecutively recruited during NICU hospitalization.
- Attendance tracked via existing NFU databases at 3 scheduled appointments.
Main Results:
- NFU attendance decreased from 84% at the first appointment to 74% by 12 months.
- Highest withdrawal rates occurred after NICU discharge, followed by the first NFU appointment.
- Nonattendance limits access to services and underreports developmental outcomes.
Conclusions:
- Early screening of mothers in the NICU is recommended to identify those at risk of non-attendance.
- Implementing strategies to overcome barriers and improve transition and access to NFU programs is essential.
Abstract:
Neonatal follow-up (NFU) programs provide health services for infants at high risk for developmental problems after they transition home from the neonatal intensive care unit (NICU). The purpose of the study was to assess current patterns of NFU attendance and explore time points when mothers and infants withdrew from NFU programs during the infant's first year of life. The study was conducted in 3 Canadian tertiary-level NICUs that referred to 2 affiliated, regional NFU programs. A total of 357 mothers and 400 infants were consecutively recruited during NICU hospitalization. Attendance at NFU programs was tracked at each of the 3 scheduled appointments from existing NFU databases. Attendance at NFU decreased over time from 84% at the first appointment to 74% by 12 months, with the highest withdrawal from NFU after NICU discharge, followed by withdrawal after the first NFU appointment. Nonattendance at NFU results in less access to required services and underreporting of the developmental outcomes of these infants. Given these findings, mothers should be screened earlier in the NICU to identify those at greatest risk of not attending NFU. Strategies should be implemented to address potential barriers and provide effective transition and access to the NFU program.
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