Early hearing detection and intervention: parent experiences with the diagnostic hearing assessment

Rebecca Larsen1, Karen Muñoz, Janet DesGeorges

  • 1Utah State University, Logan, UT, USA. karen.munoz@usu.edu

Insights

Parent experiences with infant hearing evaluations show progress in early diagnosis, but appointment delays and post-diagnosis uncertainty persist. Improving the early hearing detection and intervention process remains crucial for children with hearing loss.

Area of Science:

  • Pediatric Audiology
  • Developmental Pediatrics
  • Hearing Science

Background:

  • Early identification of infant hearing loss is critical for developmental outcomes.
  • The Joint Committee on Infant Hearing (JCIH) recommends diagnosis by 3 months of age.
  • Parental experiences are key to understanding and improving the diagnostic process.

Purpose of the Study:

  • To investigate parent experiences with the infant diagnostic hearing evaluation process.
  • To identify challenges parents face in obtaining timely hearing evaluations for their children.
  • To understand parental comfort levels and needs following a hearing loss diagnosis.

Main Methods:

  • Cross-sectional survey design.
  • Surveys distributed to parents of children with hearing loss via support organizations.
  • 416 completed surveys collected from 43 states.

Main Results:

  • Median age of hearing loss diagnosis decreased from 11 to 2 months.
  • The primary challenge reported for diagnosis by 3 months was delayed appointment availability (36%).
  • 27% of parents felt uncertain about next steps after diagnosis.

Conclusions:

  • Significant progress in reducing age of hearing loss identification has been achieved.
  • Parent-reported challenges indicate delays exceeding JCIH recommendations.
  • Parent experiences highlight areas for improvement in early hearing detection and intervention.
Abstract

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