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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Interventions provided by parents for children with intellectual disabilities in low and middle income countries
Stewart L Einfeld1, Roger J Stancliffe, Kylie M Gray
1Brain & Mind Research Institute, University of Sydney, Sydney, Australia. stewart.einfeld@sydney.edu.au
Background:
In low- and middle-income (LAMI) countries, there is a lack of well-trained therapists to provide specialist interventions for children with intellectual disabilities and their families. We sought to identify strategies deliverable by families or non-specialist workers.
Materials And Methods:
After searches of appropriate scientific databases, we applied GRADE methodology to rate the quality of evidence for these interventions.
Results:
We identified small-scale interventions trialled in LAMI countries with limited evidence of effectiveness in supporting development, adaptive behaviour and/or community participation. In high-income countries, the Stepping Stones Triple P program for adaptive behaviour and the Portage program for child development have the most extensive evidence base and may be applicable in LAMI countries.
Conclusions:
There is reason to hope that, when combined with community development strategies, the welfare of children with intellectual disabilities in LAMI countries can be advanced within those countries' economic means.
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