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Implantation of Total Artificial Heart in Congenital Heart Disease
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[Many adults with congenital heart disease are lost to follow up]

Jeroen C Vis1, Mark J Schuuring, Enno T van der Velde

  • 1Academisch Medisch Centrum, Afd. Cardiologie, Amsterdam, the Netherlands.

Nederlands Tijdschrift Voor Geneeskunde
|April 26, 2012
PubMed

Insights

Many adults with congenital heart disease (CHD) miss regular cardiological care. This study highlights the critical need for ongoing follow-up, even in asymptomatic patients, to detect potentially serious residual lesions after childhood treatment.

Area of Science:

  • Cardiology
  • Adult Congenital Heart Disease (ACHD)

Context:

  • Adults with congenital heart disease (CHD) often require lifelong monitoring.
  • A significant number of these patients are lost to cardiological follow-up, posing risks for undetected complications.

Purpose:

  • To identify adults with congenital heart disease (CHD) who have fallen out of regular cardiological care.
  • To assess the prevalence of residual lesions and the need for follow-up in this population.

Summary:

  • A nationwide campaign identified 593 adults with CHD not under regular care.
  • Within a year, 66% were seen by a cardiologist, 22% required further follow-up, and 16% had new residual lesions detected.
  • Pulmonary valve replacement was necessary in three patients.

Impact:

  • Reveals a substantial gap in regular cardiac care for adults with CHD.
  • Emphasizes the high incidence of asymptomatic residual lesions post-childhood correction.
  • Underscores the necessity of consistent cardiological follow-up for all CHD patients, regardless of symptoms.
Abstract

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