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Parenting children living with type 1 diabetes: a qualitative study
Mary Anne Nurmi1, Kerstin Stieber-Roger1
1The Department of Family Social Sciences, University of Manitoba, Winnipeg, Manitoba (Nurmi, MSc, Dr Roger)
Parents find meaning in raising children with type 1 diabetes by striving for normalcy and protection. Enhanced diabetes education in schools is recommended for better support.
Area of Science:
- Pediatric Endocrinology
- Family Psychology
- Chronic Illness Management
Background:
- Parenting a child with type 1 diabetes presents unique challenges.
- Understanding parental meaning-making is crucial for supportive care.
- Type 1 diabetes requires lifelong management, impacting family dynamics.
Purpose of the Study:
- To explore the sense of meaning parents derive from parenting a child with type 1 diabetes.
- To identify key themes in parents' experiences with childhood diabetes.
- To understand how parents navigate the complexities of type 1 diabetes care.
Main Methods:
- Qualitative collective case study design.
- 10 in-depth interviews with parents of children with type 1 diabetes.
- Qualitative content analysis to identify emergent categories.
Main Results:
- Parents derive meaning through the theme of 'being like everyone else,' aiming for normalcy.
- Parents find meaning in the theme of 'protecting the children' from diabetes complications.
- Identified themes highlight the psychological and social aspects of parenting a child with diabetes.
Conclusions:
- Greater diabetes education is needed within school systems.
- Diabetes educators should proactively engage with schools, children, parents, and staff.
- Interventions supporting parental meaning-making can enhance family coping with type 1 diabetes.
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