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Feasibility of short message service to document bleeding episodes in children with haemophilia

C R Broderick1, R D Herbert, J Latimer

  • 1School of Medical Sciences, Faculty of Medicine, University of New South Wales, Sydney, NSW, Australia. c.broderick@unsw.edu.au

Haemophilia : the Official Journal of the World Federation of Hemophilia
|June 12, 2012
PubMed

Insights

Weekly SMS messages are a feasible tool for monitoring bleeding episodes in children with haemophilia (a bleeding disorder). This method offers high response rates and minimal intrusion, aiding in tracking bleeds and potentially improving treatment compliance.

Area of Science:

  • Pediatric Hematology
  • Digital Health Monitoring
  • Clinical Trial Methodology

Background:

  • Home-based treatment for pediatric haemophilia reduces clinic visits, complicating bleeding episode monitoring.
  • Accurate tracking of bleeding episodes is crucial for effective haemophilia management in children.

Purpose of the Study:

  • To evaluate the feasibility of using Short Message Service (SMS) for monitoring bleeding episodes in children with haemophilia.
  • To assess the response rates and practicality of SMS-based data collection in this population.

Main Methods:

  • A 1-year prospective study involving 104 children with moderate to severe haemophilia A or B.
  • Participants or their parents maintained a bleeds diary and received weekly SMS prompts about bleeding episodes.
  • Follow-up data collected over 4839 person-weeks, with SMS replies analyzed for response rates.

Main Results:

  • A high follow-up rate of 86.8% was achieved over the study period.
  • Median weekly response rates to SMS prompts were 94.2% (IQR: 86.1-100%).
  • SMS reporting demonstrated high engagement and minimal participant burden.

Conclusions:

  • Weekly SMS is a feasible and effective tool for documenting bleeding episodes in pediatric haemophilia patients.
  • The system is cost-effective, minimally intrusive, and achieves high response rates.
  • SMS technology holds potential for monitoring treatment compliance, especially in adolescent haemophilia patients.

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